Resources & Guides

Everything you need to know while you wait

Honest, practical guides for families navigating the NHS neurodevelopmental waiting list. No jargon, no false hope โ€” just what you actually need to know.

Read the full guide โ†’
Legal rights
Your child's legal rights at school before diagnosis

Under the Equality Act 2010, schools have duties to make reasonable adjustments regardless of whether your child has a formal diagnosis. Here's exactly what you're entitled to ask for.

Assessment prep
How to make the most of your assessment appointment

After years of waiting, you finally have a date. Here's how to prepare โ€” what to bring, what to say, and how a structured observation record transforms the outcome.

Parent wellbeing
Caring for yourself while you advocate for your child

The emotional toll of the waiting list is real and rarely talked about. This is for the parents who are exhausted, guilty, and questioning everything โ€” you're doing better than you think.

School support
How to request a SENDCo meeting (and what to say when you get one)

The SENDCo is your most important school contact. Here's how to request a meeting, what to prepare, and how to make sure the conversation results in actual action.

Understanding
Autism vs ADHD: what's the difference and why does it matter?

Many children on waiting lists may have autism, ADHD, or both. Understanding the differences helps you observe more clearly, communicate more effectively, and advocate more confidently.

Practical guide
Private assessment: is it worth it, and how do you find a good one?

Private autism and ADHD assessments cost ยฃ1,500โ€“ยฃ3,000. Here's an honest look at when it makes sense, what to look for in a provider, and whether it will actually speed things up.

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